Saturday, September 21, 2013

My Body is a World Class Lab


I'm conducting ground breaking research on a rare skin disease - (PRP). And I have a great lab - My Body.  It is immediately accessible -24/7...  it reports test results instantly-(no bureaucratic system or Doc filtering delays). . and I have total control in administering, viewing and interpreting results.  Currently, I'm performing tests with Coconut Oil, Vaseline, Acidophilus, Triamcinolone steroid cream, and Prednisone.  The left side of my body excluding head, hands and feet is covered in Coconut Oil and the right side in Triamcinolone Steroid Creme.  Head (hair and face) have Coconut Oil. Hands  have Vaseline.  Feet currently have coconut oil covered with Vaseline.

Thursday, September 19, 2013

I crack up.

  9/19/13
 Yesterday I noticed soles of my feet are cracking and flaking and have gotten a bit tender.  Uh oh --Is this going to stop me walking?  Best exercise of all they say is walking 30 minutes a day we should all do.  I  do a lot of this.  But then I noticed that my hands which started peeling a week ago are getting much better.  Why? Vaseline.. which I'm liberally applying.  So now I'm hoping this will keep

Wednesday, September 18, 2013

I Bet My Life on Alternative Medicine

9/18/13
Rejecting Conventional Medicine, I bet my life on Alternative Medicine and am here to tell the tale 8 years later. In April 2005 I was diagnosed with prostrate cancer and began a journey which had me seeking answers in Baltimore (my home town), Phoenix, Arizona, New York State, New York City, Portland-Maine and Nova Scotia, Canada.  It started with a somewhat elevated PSA (6) resulting in me getting a biopsy which indicated I had prostrate cancer. The indications were moderate but still

Tuesday, September 17, 2013

9/17/13
My negative test result is positive?  I get an email from John Hopkins that I have new test results.  Log in to the Hopkin's great system where I can see my test results, send and receive messages, see appointments etc. In encounters in previous years with hospitals including Hopkins I have always had to yell at them to get my results in a timely way .. the usual bureaucratic confusion and wanting to have the doc look at them first. This time I got my blood test results the very next day (except for PSA)  so this is a major improvement in the health system.  I log in and see that this new test result

Monday, September 16, 2013

9/16/13
Woke up several times in night with terrific itching. Finally got up and reapplied ointment. Angst about Blog. Decided for time being to restrict to family and close friends and exclude docs. Major objective of Blog should be to promote healing which will be made more difficult if time spent on how to say things diplomatically. And time spent being concerned with viewers reactions can inhibit

Sunday, September 15, 2013

Should I do a Blog?

9/15/13
Had dinner with friend Russ last night..mentioned I'm thinking of doing a blog .. he urges me to do it .. could really help others with my newly discovered rare disease as I journey thru the medical system and seek recovery .. I am resistant .. do I have time for this .. a lot of research to do .. and I have other things I want to do in my life ... not become consumed with this disease. Wake up at 4 AM. Maybe